CHD Awareness Day!!

Somewhere…someplace… today…
A family is waiting to hear…
Is something wrong with their baby?
The answers aren’t quite clear…
This family has entered an unwanted world…
And they just don’t know what to expect…
Somewhere…someplace… today
They first heard the words: heart defect.
And how they hoped this was not true…
And thought… this cannot be…
I too… know just how this feels…
For one day…this was me.

Somewhere…someplace…today…
A man and a woman embrace…
Their baby is in surgery…
They long to see her face…
They haven’t got to hold her yet…
Without…a cord or line…
They pace the room awaiting news…
And hope she’ll be just fine.
Prayers fill this busy waiting room…
And mom and dad are scared…
Somewhere…someplace..today…
The tiniest hearts are repaired.

Somewhere…someplace…today…
A child’s growing fast…
Smiling,laughing,thriving…
His mom thinks…can this last?
It’s almost easy…to forget…
That anything is wrong…
Somewhere…someplace..today…
Her child seems so strong.

Somewhere…someplace… today…
A little boy fights…just to live
A father holds his tiny hand…
His love…all he can give…
The doctor’s are all baffled…
They fear that he might die…
Somewhere…someplace…today…
A family says goodbye…

Somewhere…someplace…each year..
More than 40,000 families will see…
What it means…when something’s wrong…
They’ll face a CHD.
Today…for just a moment…
Stop…remember…reflect…
Make time to tell someone you know…
“I’ve been changed by a heart defect”.

Author – Stephanie Husted

It’s Congenital Heart Defect Awareness Day everyone, so spread the word and spread awareness.  Here are some little known statistics about CHDs, research, etc.  taken from the Children’s Heart Foundation:

Congenital Heart Heart Defect Statistics and Facts:

  • Congenital heart defects are America’s #1 birth defect. Nearly one of every 100 babies is born with a CHD.
  • Congenital heart defects are the #1 cause of birth defect related deaths.
  • This year almost 40,000 babies will be born with a congenital heart defect. 4,000 of them will not live to see their first birthday.
  • 91,000 life years are lost each year in this country due to congenital heart defects.
  • The cost for inpatient surgery to repair congenital heart defects exceeds $2.2 billion a year.
  • Congenital heart defects occur frequently and are often life threatening, yet research into them is grossly under funded.
  • Of every dollar the government spends on medical funding only a fraction of a penny is directed toward congenital heart defect research.
  • The Children’s Heart Foundation is the only organization strictly created to fund congenital heart defect research.
  • In the last decade death rates for congenital heart defects have declined by almost 30% due to advances made through research.
  • The Children’s Heart Foundation has directed almost $2 million to 24 different congenital heart defect research projects.
  • More than 50% of all children born with a congenital heart defect will require at least one invasive surgery in their lifetime.
  • There are 35 different types of congenital heart defects. Little is known about the cause of most them. There is not yet a cure for any of them.
  • In the U.S., twice as many children die from congenital heart defects each year than from all forms of childhood cancer combined, yet funding for pediatric cancer research is five times higher than funding for CHD.

The Children’s Heart Foundation also has a parent resource book called “It’s My Heart” that talks about all of the different CHD’s, Tests, and surgical procedures in plain everyday language.  The book is free.  You can obtain a copy of this book here: It’s My Heart.

 To Learn more about Congenital Heart Defects feel free to browse through my Heart Links Section.

If you would like to support CHD research, a donation to the Children’s Heart Foundation can be made here.

If you would like to donate to our Heart Walk please visit my Heart Walk Page.

Happy Valentine’s Day, and take care of those hearts! 🙂

8 Comments

Filed under CHD, Heart, TGA

8 responses to “CHD Awareness Day!!

  1. Happy Valentine’s and CHD Awareness Day! 🙂

  2. That was very nice…
    very informative, too! I don’t think most people realize all of this.
    Hope you had a wonderful “heart day”.

    xo

  3. That poem was amazing!

    I also just ordered a copy of that book. I can’t wait to get it.

  4. Deb

    Very well written informative post. Hope you have a great Valentine’s and Heart Day.

  5. Please keep little Lincoln Carter in your prayers .. he went in about an hour ago for a heart transplant … finally after 8 long months of waiting in the hospital

    http://www.littlelincolncarter.blogspot.com

  6. Good post if you or your readers would like more info you should also know that there is approx 1 million adults living with CHD.. Check out the Adult Congenital Heart Association at http://www.achaheart.org for more info.

  7. Sydney Taylor

    Hey!I am 14 and have a CHD called congenital heart block. It’s wonderful to see people working toward something other than things like cancer, AIDS, and diabetes… everyone already knows about those things!!!! Anyway, this website is a blessing for me and I’m sure everyone else affected by CHDs. Thank you for your dedication… it’s because of people like you that I’m alive today. 🙂

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